[split] Low Dose Naltrexone

[Bill]

The idea that ldn will never be evaluated for other conditions because it is out of patent has confounding precedents. Thalidomide's resurrection as a treatment for myeloma and DMF's Tecfidera alter ego are examples. There have been evaluations of ldn such as Glasgow 2013 for psoriasis and Ojai Foundation's HIV trial (2008-2010), but there seems to be a paucity of results. A failure to release results does not fill me with optimism.

[Closed]

The majority of testimonials are paid advertisements.

Yep I often get people contacting Psoriasis Club offering to give testimonials on other review sites for a small fee (usually from India and very cheap) as you can imagine they don't get an answer back from me.

All testimonials should be taken with a pinch of salt and it's only peoples personal experiences that hold any worth in my opinion.

You guys must be talking about something else. The testimonials I am referring to are the personal experiences from patients and doctors who have benefited from its use.

But I do agree, as I have mentioned before, that testimonials are probably the lowest form of evidence. Strictly anecdotal.

Eitherway, as far as LDN is concerned, it's against the law to promote any pharmaceutical for its off label use. A pharmaceutical giant has been convicted of a felony for just that reason. Plus with it being a dirt cheap item, who could afford to advertise it. In the case of LDN, there is no profit to be gained from advertising, even if it was lawful. It's a good bet, the testimonies/personal experiences are real concerning LDN.

[Fred]

A failure to release results does not fill me with optimism.

True and as it's been around a long time I would have thought there would be more results. But in the treatment of psoriasis (which is what we are concerned with here) there seems to be very little.

Eitherway, as far as LDN is concerned, it's against the law to promote any pharmaceutical for its off label use.

Ok so now you are telling me that it is against the law for me to let you or any other member to talk about it's use for psoriasis on Psoriasis Club ? That's worrying as I'm the one who will end up in court not you.  

[Closed]

The point of advertising is for profit. Paid for testimonials is for profit. There is nothing to profit in advertising LDN.

It's incorrect to think anyone would promote LDN for financial gains.

[Fred]

The point of advertising is for profit. Paid for testimonials is for profit. There is nothing to profit in advertising LDN.

It's incorrect to think anyone would promote LDN for financial gains.

Can you answer my post above please ?

[Bill]

For one thing health insurance companies are always interested in a cheaper product that does the same job.

What perplexes me most is how you have come on this forum totally sold on a product which you have barely been on a month, seem reluctant to outline your treatment parameters, and acknowledge that the treatment might not even work. Is it any wonder you cause such a stir?

You have said your bit about how utterly fantastic ldn is for just about every disease afflicting mankind as well as the completely plausible reasons why it has not been adopted as a treatment for them. Now that you have done that you can share your personal expectations and experience with it, because that is the crux of this forum. Your treatment is novel and so your experience is rare and of interest. I genuinely wish to see people effectively treated and will give encouragement and advice where I can. I think that everyone else here has the same ethos.

Cheers

Bill

[jiml]

For one thing health insurance companies are always interested in a cheaper product that does the same job.

What perplexes me most is how you have come on this forum totally sold on a product which you have barely been on a month, seem reluctant to outline your treatment parameters, and acknowledge that the treatment might not even work. Is it any wonder you cause such a stir?

You have said your bit about how utterly fantastic ldn is for just about every disease afflicting mankind as well as the completely plausible reasons why it has not been adopted as a treatment for them. Now that you have done that you can share your personal expectations and experience with it, because that is the crux of this forum. Your treatment is novel and so your experience is rare and of interest. I genuinely wish to see people effectively treated and will give encouragement and advice where I can. I think that everyone else here has the same ethos.

Cheers

Bill

Hi Bill I think you have explained very clearly the facts as we all seem to see them apart from

I agree it's causing a stir for all the wrong reasons, and yes we all want to hear genuine people with genuine experiences, unfortunately I don't think we are going to see that here

[Closed]

Someone mentioned that a drug company, I forget the name, filed, or gained the licence or patent for LDN last year. Not sure of the details or if I am even explaining it correctly, but I had heard previously that this company was looking to   acquire it, and according to what I heard, it must of gone through.

Now, naturally you would assume that maybe now some relevant studies might get done. But I'll bet nothing happens. It will be put on the shelf somewhere to rot.
Cheap and effective is not what the Pharma Giants want. 

And before being called a conspiracy theorist, let me remind you some of these companies have a felony record, due to their greed for profits.They will safe guard their investments.

I really don't wanna go down road. It's like talking about politics and completely off topic. 

Rather just stick with the benefits of LDN. I'm conducting a few little test of sorts with my use of LDN. I take quite a few supplements on top of it, so it would be difficult to ascertain what I am benefiting from. So, I am going to start over.  I'm taking a week off, see if there is any difference. And I could tell after just two days, there is a slight change. My hand joints are hurting again. I will restart LDN with only a multi-vitamin, CoQ10, selenium, vit D and magnesium. Those are my trusted supplements that I have been using for years. I get the feeling I need to reduce the doses of all my supps when adding them back in. That is recommended whenever you take multiple supplements. LDN is powerful. I feel it immediately after taking it. Calming, relaxing feeling comes over me. But as described it does cause me sleep disturbances. Need to get back to a regular sleep cycle, hence the break.

I record all my actions, but I still feel I am not a good candidate to go by my personal experience. I have comorbidities, take numerous supps, and other concerns. There are many examples of peoples experiences with LDN out there. I have been here a short time, and have written quite an amount of information on LDN. With what I have written , do any of you honestly believe, that I decided on taking this drug, without seeing the results it had for others?  Or not reading the studies done?  Or how it was used and what effects it had clinical practice? The information is out there, otherwise I would not be taking it. I don't consider myself a guinea pig. I suggest everyone do the same, and research it for yourself, trust no one but yourself, when your health is on the line.

[Closed]

The point of advertising is for profit. Paid for testimonials is for profit. There is nothing to profit in advertising LDN.

It's incorrect to think anyone would promote LDN for financial gains.

Can you answer my post above please ?

I thought I did.

No one here is selling their own product for off label use

It is Ok for doctors to prescribe medications for off label use. But a company got caught suggesting to push their product (Gabapentin) for its off label use, and that's a felony. It cost them 100's of millions in fines, and a felony conviction. All due to the greed for profits.

[Fred]

I'll take that as a No then, as you are still not answering my question yet promoting a product for off label use. Are you a politician by any chance.

I've said it before and I'll say it again You are a Troll. Now you mention supplements too, can I ask are baths in baking soda or the milk of an ant coming next ?

You are a Charlatan, this is someone else's thread and you have hijacked it because yours got closed. You were told you were welcome to start your own thread about your experience using LDN for psoriasis, but you just keep on running over the same old ground without any personal proof or regard for others.

A few times you have said you are going or you don't have time to continue posting here but you are still trolling along.