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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Bimzelx for psoriatic arthritis Fred's journey

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Bimzelx for psoriatic arthritis Fred's journey
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,480
Threads: 63
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#251
Sat-27-09-2025, 17:47 PM
(Sat-27-09-2025, 12:37 PM)Fred Wrote:
(Sat-27-09-2025, 12:30 PM)Caroline Wrote:
(Sat-27-09-2025, 11:37 AM)Fred Wrote: Update: It was time for my maintenance shots today, but I'm trying something different this time. Instead of taking both shots of 160mg for 8 weeks I have taken one and will take the other one at week four. I did contact my dermatologist to see what she thought but as she is now head of department I don't think she has the time, so I'm going to give it a try and see how it goes.

The reason I'm trying one shot every 4 weeks is because I've noticed a little tail off around week 6 for the psoriatic arthritis and I have read that Bimzelx do now recommend 160mg every 4 weeks for psoriatic arthritis, but still 2 shots every 8 weeks if the patient has moderate to severe psoriasis, I have zero psoriasis now so it's got to be worth a go.

Psoriasis score: 0

Psoriatic arthritis score: 3

No side effects.

Sensible move I think.


Yes and I can always switch back if it doesn't work.  Thumb

Sounds like a plan, it makes sense to have more continuous coverage, in theory.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 68,409
Threads: 3,952
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#252
Sat-27-09-2025, 19:59 PM
(Sat-27-09-2025, 17:47 PM)Turnedlight Wrote:
(Sat-27-09-2025, 12:37 PM)Fred Wrote:
(Sat-27-09-2025, 12:30 PM)Caroline Wrote:
(Sat-27-09-2025, 11:37 AM)Fred Wrote: Update: It was time for my maintenance shots today, but I'm trying something different this time. Instead of taking both shots of 160mg for 8 weeks I have taken one and will take the other one at week four. I did contact my dermatologist to see what she thought but as she is now head of department I don't think she has the time, so I'm going to give it a try and see how it goes.

The reason I'm trying one shot every 4 weeks is because I've noticed a little tail off around week 6 for the psoriatic arthritis and I have read that Bimzelx do now recommend 160mg every 4 weeks for psoriatic arthritis, but still 2 shots every 8 weeks if the patient has moderate to severe psoriasis, I have zero psoriasis now so it's got to be worth a go.

Psoriasis score: 0

Psoriatic arthritis score: 3

No side effects.

Sensible move I think.


Yes and I can always switch back if it doesn't work.  Thumb

Sounds like a plan, it makes sense to have more continuous coverage, in theory.


Yes I would have preferred to get the go ahead with my dermatologist, but I know she is very busy and she knows I know how far to go .................... she once said she would like me sitting beside her at psoriasis consultations. Big Grin
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Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,903
Threads: 133
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Hyrimoz, Moisturizers, Triamcinolonoe Acetonide
#253
Sun-28-09-2025, 13:14 PM
(Sat-27-09-2025, 19:59 PM)Fred Wrote:
(Sat-27-09-2025, 17:47 PM)Turnedlight Wrote:
(Sat-27-09-2025, 12:37 PM)Fred Wrote:
(Sat-27-09-2025, 12:30 PM)Caroline Wrote:
(Sat-27-09-2025, 11:37 AM)Fred Wrote: Update: It was time for my maintenance shots today, but I'm trying something different this time. Instead of taking both shots of 160mg for 8 weeks I have taken one and will take the other one at week four. I did contact my dermatologist to see what she thought but as she is now head of department I don't think she has the time, so I'm going to give it a try and see how it goes.

The reason I'm trying one shot every 4 weeks is because I've noticed a little tail off around week 6 for the psoriatic arthritis and I have read that Bimzelx do now recommend 160mg every 4 weeks for psoriatic arthritis, but still 2 shots every 8 weeks if the patient has moderate to severe psoriasis, I have zero psoriasis now so it's got to be worth a go.

Psoriasis score: 0

Psoriatic arthritis score: 3

No side effects.

Sensible move I think.


Yes and I can always switch back if it doesn't work.  Thumb

Sounds like a plan, it makes sense to have more continuous coverage, in theory.


Yes I would have preferred to get the go ahead with my dermatologist, but I know she is very busy and she knows I know how far to go .................... she once said she would like me sitting beside her at psoriasis consultations.  Big Grin

I think having you sitting alongside your doctor's consultations would be a true benefit to her patients.  You'd be like an expert-witness-patient.  Cool


This spacing of your Bimzelx may feel the same for a month or so if your body keeps stores of it.  Fingers crossed for you.  You're thinking smart.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 68,409
Threads: 3,952
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#254
Sun-28-09-2025, 13:20 PM
(Sun-28-09-2025, 13:14 PM)Forest Walker Wrote: This spacing of your Bimzelx may feel the same for a month or so if your body keeps stores of it.  Fingers crossed for you.  You're thinking smart.


Thank you FW Thumb
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 68,409
Threads: 3,952
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#255
Sun-26-10-2025, 11:45 AM
Update: It's working, I took the other shot yesterday and I'm very pleased with the results..

So I'm going to stick to one shot of 160mg every 4 weeks instead of two every 8 weeks for the rest of this year and see how it goes.

Psoriasis score is still zero

Psoriatic arthritis score however has gone down from 3 to 1 87

No side effects to report.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 27,209
Threads: 114
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#256
Sun-26-10-2025, 19:53 PM
(Sun-26-10-2025, 11:45 AM)Fred Wrote: Update: It's working, I took the other shot yesterday and I'm very pleased with the results..

So I'm going to stick to one shot of 160mg every 4 weeks instead of two every 8 weeks for the rest of this year and see how it goes. 

Psoriasis score is still zero

Psoriatic arthritis score however has gone down from 3 to 1  87

No side effects to report.


That is very encouraging. Thumb
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 68,409
Threads: 3,952
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#257
Sun-26-10-2025, 21:07 PM
(Sun-26-10-2025, 19:53 PM)Caroline Wrote: That is very encouraging.  Thumb


Yes I'm pleased, but I don't recommend anyone following what I'm doing without consulting the person prescribing the treatment. Wink
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Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,480
Threads: 63
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#258
Yesterday, 17:45 PM
(Sun-26-10-2025, 21:07 PM)Fred Wrote:
(Sun-26-10-2025, 19:53 PM)Caroline Wrote: That is very encouraging.  Thumb


Yes I'm pleased, but I don't recommend anyone following what I'm doing without consulting the person prescribing the treatment.  Wink

You do wonder how they decide on the regimes they end up with..
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 27,209
Threads: 114
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#259
Yesterday, 20:49 PM
(Sun-26-10-2025, 21:07 PM)Fred Wrote:
(Sun-26-10-2025, 19:53 PM)Caroline Wrote: That is very encouraging.  Thumb


Yes I'm pleased, but I don't recommend anyone following what I'm doing without consulting the person prescribing the treatment.  Wink

I have done that all the time. Kinda self prescribing.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 68,409
Threads: 3,952
Joined: Aug 2011
Gender: Male
Location: France
Psoriasis Score: Zero
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#260
Yesterday, 21:05 PM
(Yesterday, 20:49 PM)Caroline Wrote:
(Sun-26-10-2025, 21:07 PM)Fred Wrote:
(Sun-26-10-2025, 19:53 PM)Caroline Wrote: That is very encouraging.  Thumb


Yes I'm pleased, but I don't recommend anyone following what I'm doing without consulting the person prescribing the treatment.  Wink

I have done that all the time. Kinda self prescribing.

Yes I will be telling my dermatologist next May what I have done, but for now I'm enjoying it.
Quote
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